Testimonies

 
 
 
Home > Dwarfism > People with Dwarfism > Testimonies > Janie R.
 

My name is Janie, and I am 13 years old. I have a very rare illness called spondyloepimetaphyseal dysplasia.

I just started my first year in high school. I am in a programme called the International Education Programme. In this school, I have two special education technicians who help me as needed. They help me carry my school bag, and one of them is in my gym class to make sure I do only what I can do and no more. I have some adaptations at my disposal, such as a small footstool in the toilet, a smaller locker, and shelves within my reach. I have Tripp Trapp chairs in all classrooms, and one of the microwaves in the cafeteria is lower for me to reach it. Also, I use a scooter to get around the major corridors.

I do not have many friends because I choose people who love me for who I am and not for what distinguishes me. Also my best friend moved far away, so at first I was alone, but it did not take long before I made new friends.

To go to school, I use Paratransit, a special transport service run by the STM (Société de transport de Montréal).

As an extracurricular activity, I play the clarinet in a Harmonie band.

In any case, I am sure that with or without my scooter, there are people in the school who are not very nice, and when it happens, I explain to them why I need it. Sometimes they understand and if not, I ignore those who bother me.

Finally, I love my life even though sometimes I wonder why it had to happen to me. Even if I am different, I do not stop living because there are people around me who appreciate me for who I am.

Janie R., February 2009

 

 
 

© 2011 AQPPT - Translated by George Bravo and Judy Murphy